Friday, October 28, 2011

Why, why why??...A Parent's Heartbreak

This is a common question my almost 3 yr old poses to me everyday, but "why Mommy", "why are we doing that Mommy"...etc. Recently Keith and I found ourselves reverting back to our 3 year old ways, asking Why, Why, Why God?

On October 10th we got our 20 week ultrasound....and to our delight we found out we're having yet another little boy. Then about 5 mins later, 3 little words change our life, our demeanor that day, and rocked our world. Those words were...."there's a complication". This sentence was followed by "everything else looks good, appears to be healthy and on track, but..."with that my heart sunk. You never imagine those words will be presented to you and your not sure what to do with them when they are.

We were told that the baby was missing a bone in his right lower leg and the other one was underdeveloped. After hearing this, tears ensued and all other information that was given to us was lost and not processed. The day I had looked forward to for the last few months turned into a day I wanted to forget. The next day I was sent for an amniocentesis (which test for chromosomes deficiencies, which after 10 days of waiting for the full results, they came back normal) and I wondered if it's just a leg defect, then why do I need this? Is there something more?

I was also sent a week and half later for a 2nd ultrasound to check the leg out more. As I sat through the 2nd ultrasound, it was so painful, no joyful feeling. There was a little cute face, a heart beat, and this leg that just looked like a blob and not "normal". They continued to focus on the leg and all I could do was cry. I thought about how I had wished for more ultrasounds to see my baby and now I didn't want one.

Those two weeks were an emotional roller coaster full of joy, sadness, anger, grief.......and then like a light went off, acceptance. My OB says I was going through the stages of grieving....and I thought -What? She said, I had lost the baby that I thought I was going to have, a "normal" child. As I finally brought myself to look at the 3D ultrasound pics of his face...I fell in love with the baby boy I was meant to have and who was a true gift from God, a miracle.

The condition the Baby has is called Fibula Hemamila. It's a condition that happens in 1 out of 40,000. He has a underdeveloped and bowed tibia and no fibula (the two bones that make up your bottom portion of your leg) on his right side. .We learned that this was probably due to some type of blood flow blockage or restriction when he was developing.

We have consultant with CHOP, DuPont, and Sinai Hospital in Baltimore. The out come is that the flow of blood in his leg looked good now and they believe he'll be ambulatory. He would need a few surgeries (prob 3) throughout childhood- a reconstruction of his ankle and straightening of his tibia and then two limb lengthening surgeries. Luckily, it's better to have a missing fibula then tibia as the tibia is your weight baring leg. The echocardiogram and the ultrasound showed all else appears healthy and right on target.

The procedures/surgeries wouldn't start till he was a yr to 18 months old most likely. He'll have a long road ahead of him with PT and all, but the outlook is good. We're feeling very fortunate that this is the only complication as we saw other very sick kids during our hospital visits.

The funny thing about this experience was that it brought Keith and I even closer, which we didn't think was possible. We also named him, which is a shock to begin with since Aiden's name came to us very last minute, but we felt we needed to come up with something to bond due to his circumstances. We also changed our mind and are sharing due to his situation. It will be....... Jonathan Paul. Few meanings behind it- Keith’s two favorite Beatles, even though Lennon spelled it JOHN. Also a little tribute to his cousin that passed in August that was a drummer living in CA (He was also John, but Paul was his middle name) and Jonathan means gift from God, which we feel he is. Our parents and Keith have already nicknamed him JP and Aiden apparently doesn't like the name Jonathan, he prefers we name it Baby.

A Pumpkin Picking we'll go....









A couple weeks ago, we met up with our friends the Grahams and took the kids to a local farm near us called Milky Way Farms. There we went in a corn maze, took a tractor ride to the pumpkin patch, picked out some pumpkins, and then went over to the creamery next store and got fresh homemade ice cream. It was a great time together, the boys loved the tractor and the ability to run through the fields. Here are some pics to enjoy and wishing everyone a Happy Halloween!!

Wednesday, September 28, 2011

A Rainy Day Out with Thomas

Last Friday, we went back to Strasbourg Railroad and took Aiden to see Thomas again. We went with our good friends the Grahams, who have a 2 1/2 yr old son Colin and a 6 year old daughter Ava. Unfortunately it was a miserable day and it poured the whole time we were there, but that didn't slow the kids down, they enjoyed it all the same and had the bonus of jumping in puddles. Here are some pics from our rainy day out!


The Gang with Thomas

Ava and Aiden with Thomas
Aiden and Ava hanging out with Sir Topham Hatt
Happy (and wet) little boy
Looking at the window...at all the rain
The three kids playing with the train table (little does Aiden know he's getting one soon)

Friday, September 23, 2011

Potty Training, Baby update, and Mini Vaca

Sept has been an interest month to say the least. When Hurricane Irene hit, we decided to start potty training....I mean we weren't going anywhere anyway. Potty training has been my least favorite part of parenting. Aiden has transition so well throughout the years from giving up the bottle, to giving up the pacifier, and going into a bed. Potty training has come with struggles, but I'm sure there are other horror stories out there that are worse.

By the second day he was doing great and by the end of the first week, he regressed. I would say that after the first two weeks, he did master #1. Aiden loved the idea of wearing new underwear a few times a day that after going on the potty he would say he needs a new one, even though they were dry. I guess that's what I get for buying him cool underwear- LOL. He also started sitting all the time (whether he had to go or not) to get a treat. Aiden did pick up quickly enough that now if he's wearing a diaper (typically at night time or long trips) he still tell us when he has to go. Not to be to graphic, but after 4 weeks we're still struggling with #2 on the potty, so there's lost of "cleaning" going on in our house and I pray he catches on soon. I don't why I waited till I was pregnant to do this. He also won't go on anything, but his little potty, so being out is a bit of a pain and we now travel with a potty (I actually got a travel potty, but he's not a fan of that yet).

This week, Aiden mastered taking off his own diaper, which might seem wonderful to people, but it's at 6:30am and sometimes it's not clean or he has to go and his potty isn't in his room, so he just goes in his room. I definitely need more patient with this, but I must say Keith has done a great job encouraging and trying to keep up his enthusiasm. I must say this is very trying!

Our second child, Baby 2.0 was doing well at my 16 week check up on Sept 14th. The heartbeat was 155 beats per min. They said all looked good and my weight gain is just under 5 lbs. I'm still wearing regular pants, but did move into some maternity shirts because some of my regular shirts are getting a bit tight. I'm finally starting to look pregnant, though the women in Motherhood the other day questioned it- LOL. I am also starting to feel pregnant and have become very uncomfortable fast, it's prob because I'm doing so much and not sitting around like last time, but the doc says it's normal stuff for 2nd pregnancies. We're scheduled for our next drs visit and ultrasound, Oct 10th. Can't wait....start thinking about your guesses- boy or girl as we'll (hopefully) know it about two weeks.

Lastly, a couple weeks ago, we got to go away for a mini weekend vacation down to the Jersey Shore courtesy of Keith's friend George's mom. She has a nice house in the Villas (the back bay of Wildwood/Cape May) and said we're invited to use it anytime they're not there. It was suppose to be a nasty weekend, but turned out to be sunny and 80 degrees everyday. We went to a water park, the beach, and the zoo. Aiden loved playing in the bay and enjoyed the rides so much that after 3 hrs on them we had trouble bribing him away with ice cream. His favorite ride was the tram car....or as it called it the train. We rode the whole boardwalk down. The zoo wasn't something Aiden enjoyed much of as he could careless about the animals...guess I'm not raising a nature lover. Well enjoy the pics!













Tuesday, August 16, 2011

Aiden has decided to get in on the blogging and wanted to share...


That's right, we are expecting #2. I was 12 weeks this past Monday, August 15th (my nephew's bday). I'm due Feb 27th, but will be induced a week early to prevent the complications I had with Aiden and a possible c-section. So far, we had two appointment and ultrasound and all looks good. On Monday, the baby's heartbeat was 160 beat per min. For those wondering, we will be finding out this time (I hear many sighing in relief- LOL), but we will be keeping the name a secret to the big day (although if it's another boy that won't be to hard since it took forever for us to come up with Aiden). Here's Baby Giosa version 2.0 first picture, we'll keep you posted on both our little ones in upcoming blogs.


Monday, July 25, 2011

Vacation, birthdays, and tantrums

THE GANG INFRONT OF THE HOUSE

FAMILY SHOT


Welcome to the end of July- it's been a busy month with 4th of July celebration, our week long vacation to Outer Banks, Keith's birthday, and a month full of terrible 2's.

We're hoping everyone is enjoying their summer and has been trying to beat the heat. We have kept cool by the pool. We spent the forth of July going to the parade and meeting up with Marc, June and their kids Natalie and Marc. Aiden loves hanging out with his cousins and he loved the parade....as long as there was no firetrucks waling on their hornes. It never bothered him in years past, but this year it got to him.

We followed the 4th of July up by ending to the shore that Sat for our week long vacation to Outer Banks, NC. We loved it there and stayed up in Corolla. Unlike last year, we actually had NO hurricanes and made it through the full week- hooray! We went with our good friends Frank & Nicole, and Kevin and Nicole and their two kids Ava and Colin. Aiden loved having friends to play with all week (and so did Mommy and Daddy). He also loved the sand and the ocean this year and had no fears with either. Our week was full of sunshine and was just relaxing and gorgeous. It went by two quick, but we had a lot of fun and grateful for the laughs and time spent with wonderful friends.

Yesterday, (okay really all weekend long) we celebrated Keith's 34th birthday. Sat, Keith and I went to Atlantic City to see a comedian Daniel Tosh and get some great dinner. Then Sunday (his actual birthday) we did a family day going to the movies and Aiden and I made him dinner.

Lastly, it appears we are now learning terrible 2's....hardcore. Our sweet, pretty obedient boy left us somewhere along the way and has turned into a boy who cries or gets mad (sometimes hits or yells) when he doesn't get his way. The last week has been definitely the trying part of parenting. He has never acted like this before so it's getting the best of us and making us exhausted...not to mention he also has learned the art of prolong bedtime. Everyone says it's a phase (as a parent you learn to hate that phrase), this is one I hope passes quickly and our sweet obedient boy comes back soon.













Tuesday, June 21, 2011

Mini Vacation

We had a mini vacation this past weekend heading to Dutch Wonderland and staying overnight to go to Day Out with Thomas. Aiden loved both and we all had some great family time, laughing and giggling a lot. It made Keith's father's day and we hope all the Dad's out there enjoyed their day as much as he did.

Aiden did great at the rides at Dutch Wonderland, even though we'd ask him if wanted to do a ride and he say no. He would keep saying again, smiling and laughing. And of course, Day out with Thomas was his favorite! We did it once before in November, but it was nice to experience without being bundled up! Below are some pics of Dutch Wonderland and the next post down has Thomas pics. Enjoy!

First picture with Thomas of the weekend


Getting ready for his first spin



Having fun driving with Daddy...we'll see if it's the same in another 14 yrs- LOL




With Mommy






With Daddy






Giddy Up! An Amish at heart





Driving the monster truck...a pro





Working the bulldozzer





Riding the boat with Mommy and Daddy





Aiden is a bit scared we'll crush him