So far, yet so close

Last week, Jonathan went for his 4 month orthopedic follow up. He had a few X-rays and was examined by his doctor. Her response was "what a beautiful leg", and we couldn't agree more!! She said his bone had healed wonderfully and we can see that!

What a difference 6 mos makes too! JP now goes through X-rays and visits with no tears, not much  movements, and no problems!  Of course we have the iPad playing which also helps! On top of his current AFO (which we had to have extended because his little foot is growing!!), Jonathan will also be getting a SMO on his left (non FH) leg. He is getting a SMO because his non FH foot tends to roll out due to over compensation, so we are hoping this helps him with it.

We are ready to start thinking about the next phase- legthening. Jonathan's leg is ready at any time, but Mommy and Daddy are not there yet. We are thinking about starting legthening next spring, right after Jonathan turns 3. 

With the next surgery, comes new terrority for us as FH parents- the external Fixator (the pic above). We almost feel "gypped" because his first surgery only dealt with castings. So now we will learn the joys and sorrows of Pin turns, pinsite infections, and altered clothing. Our hope is the gain 5 cm in Jonathan's leg /bone, so it will be 5 months in the ex-fix.

 Jonathan's current leg difference is measuring between 7-8 cm, while it seems like a lot, nothing holds this kid back. He's adventous, curious, and just plain crazy!  And while this Mommy has a lot of anxiety about the next surgery and the "ex-fix", we are loving all the amazing moments of everyday life with our sweet boy for now!